the air conditioner that the town of Mullumbimby so kindly has help raise the funds for. “Wow”, this really is happening and once again the disbelief causes me to shed a tear, something out of character I know :).
The installation all went smoothly and late on Thursday afternoon we were sitting at home in the nice cool air and I felt completely cool and free of sweat (gross). I can't explain how much more bearable all the other symptoms are when you don't have the heat to make them worse.
I am eternally grateful for all of you that helped make this happen, you all know who you are and my thank-you's will take forever to get through.
We headed out to dinner for my Son's Birthday to the Chinese Restaurant in Brunswick Heads and had a lovely meal and cake to finish the evening. It was 8.30pm by this stage and I was tired and the fatigue got me... We headed home. Straight to bed for this little duckling.
Celebrating Caelan's birthday took me back
to a very sad day for me back when I was in Gold Coast hospital. I
was admitted to hospital 3 weeks before my 2nd
son, Joshua's birthday. I remember one day whilst my three boys were
taking turns driving me round the hospital in a wheel chair, Josh
looked at me and said “Mum, will you be home for my Birthday?”.
It was still another week and a half away and I said “Of course
that is ages away”. I never made it home for his birthday and it is
the first time in my life as a mother I have not woken up and be
bounced on by the birthday boy waiting for his kiss, hugs and
presents. It broke my heart. I called him and his voice was quiet. I
wished him a happy birthday and hung up the phone and cried and
cried. Did he know how much I loved him? Did he know how
desperately I wanted to be home with him today and did he know I hard
I had tried? All these thoughts drove me crazy most the day.
Michael was bringing them
up after school and the doctor had allowed we a couple of hours leave
from the hospital to go and have dinner with him. They picked me up
and it was the first time I had seen the outside world for 2 weeks.
Earlier in the day my in-laws and parents and Aunty from Melbourne
had visited. Judy had ordered me a cake (see I always make my kids
cakes and Joshua had asked for a Bart Simpson cake) in the style of
Mr Bart Simpson and had brought it to the hospital to have with my
Joshua when he arrived.
Well as the afternoon
went on the ward became a buzz with the fact I was going on and
outing and taking the cake that they tried to con me for a piece of.
As I left the ward the nurses waived me off and were all shouting to
have a wonder couple of hours with my family. I returned back after
dinner and was welcomed back and tucked in by the nurses who wanted
to hear all about it. I had to tell them I would talk about it
tomorrow as tonight after saying goodbye I was too emotional and just
needed to go to bed. Once again I cried myself to sleep. I wasn't
home to yell out “goodnight Birthday Boy” as I always do on
birthdays when they go to bed.
So today is the day after installation, the 1st of November. I awoke this morning with a dreadful headache, it was pounding and the nausea was rotten. I took my medication layed back down for half and hour before getting up, taking the last med with a mouthful of food . I tried to drink a cup of tea but I ended up vomiting. I felt weak but thought once I got to work and the meds kicked in I would be ok.
But.....by the time I got
to work I was sweating, nauseous and weak, my legs were hardly
holding me up and I got scared they were going to collapse like they
did on my initial day of onset in March. Keren at work called my
parents and as they always do at work, with my best interests at
heart, the bosses insisted I go home and rest. My father and his
neighbour, Jeff, came and drove me home as I felt my legs were too
weak and I was scared of another attack. I went to bed and spent the
entire day there. I am awake now in my bed typing this and the
symptoms have eased and my legs are feeling stronger. There was one
symptom I didn't have to deal with today and that was the added heat.
My house was cool and I was able to rest and get the sleep I needed
to get me through the day.
So tomorrow brings a new day and my online Australian support group has a new member I need to get to know. That makes 9 ladies on the site now and it is a great little group with great ladies who provide support and encouragement on a daily basis for each other. I am also going for some scenar therapy and massage which gives me some relief for some of my symptoms.
Goodnight all.
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